continued from part 1
--------------
Dazed, we left the exam room,
made it through scheduling an urgent neurology appointment and walked to the vehicle.
i cannot have multiple sclerosis. i have 2 little kids.
i cannot have MS. I cannot have MS.
made it through scheduling an urgent neurology appointment and walked to the vehicle.
i cannot have multiple sclerosis. i have 2 little kids.
i cannot have MS. I cannot have MS.
we stared at each other in the truck.
i barely slept that night, waking earlier than my usual hour.
i sat down with my favorite mug of strong coffee filled with {more-than-a-dash of} half and half.
I started reading and reading and reading about MS.
I knew no one with it, I understood nothing about the disease.
and then,
I opened my vintage-floral, hard-cover, well-worn, much-loved, and so-needed ESV Bible.
I searched for truth. for help.
{I searched for hope}.
---
I recently read this quote about preaching
{what my beloved husband does for a living}:
Preaching is something dangerously public that emerges from something intensely private.
I kinda feel that way about blogging, too.
I know sometimes I just write about the kids or food or every day fun stuff,
but often what I write about comes from a place deep inside me.
a place that stems from my early mornings with my coffee and my Bible.
my pen and a journal.
most of what I write about our health situations
{including this latest MS journey}
stems from a place deep inside my heart.
so, thank-you for listening, for reading, for loving.
i am often boggled that people would ever even read what i write -
it never seems overly interesting to me -
but, thanks.
here's the rest of the story.
--
i've seen 2 different neurologists.
I've had a lot of testing done.
lots.
we've ruled out basically everything else my symptoms could possibly be -
from the simple stuff like vitamin deficiencies to the serious stuff like strokes.
what we do know is that it's not anything else.
at my last neurology appointment -
where, as we were walking into the building my entire left arm and leg went instantly weak
{kinda ironic?}
the neurologist, an MS specialist,
said that it does seem like MS.
the symptoms are presenting like MS symptoms.
my very first MRI was indicative of MS.
in her words,
Multiple Sclerosis is a real possibility.
there are likely no other possibilities.
my c-spine {neck} MRI came back clear.
this does NOT mean that it's not MS
{as I've heard some people have thought}.
it DOES mean that if it indeed IS MS,
the disease is not advanced.
which, is good.
in a week we'll {hopefully} have some more solid answers.
as for me?
i'm doing okay.
a month ago i was on the verge of panic.
sheer and utter panic.
but now?
i'm okay. really.
almost weirdly okay.
i don't know if it's just the fact that it's been awhile since my last appointment,
or if the peace that passes all understanding is guarding my heart and mind.
probably both.
because, you know what?
this is what I wrote in an email to my sweet husband,
who's been ever-supportive,
at very early in the morning after we got the initial MRI results indicative of MS:
I've been telling myself all night (barely slept!) that what I believed about God yesterday is the same today. He is ever-present in the time of trouble. He has created good works for me to do, and his grace is so very sufficient.
that email?
it's so true today.
whatever news i get from the neurologist in a week
{be it an official diagnosis, an official non-diagnosis, or just a wait-and-see situation}
will not change what I believe about God.
{that He is all-powerful, all-Knowing, all-Sovereign}
for, His plans are to prosper, not to harm me, and to give me hope and a future.
may I love not my life, even unto death.
revelation 12:11
i barely slept that night, waking earlier than my usual hour.
i sat down with my favorite mug of strong coffee filled with {more-than-a-dash of} half and half.
I started reading and reading and reading about MS.
I knew no one with it, I understood nothing about the disease.
and then,
I opened my vintage-floral, hard-cover, well-worn, much-loved, and so-needed ESV Bible.
I searched for truth. for help.
{I searched for hope}.
---
I recently read this quote about preaching
{what my beloved husband does for a living}:
Preaching is something dangerously public that emerges from something intensely private.
I kinda feel that way about blogging, too.
I know sometimes I just write about the kids or food or every day fun stuff,
but often what I write about comes from a place deep inside me.
a place that stems from my early mornings with my coffee and my Bible.
my pen and a journal.
most of what I write about our health situations
{including this latest MS journey}
stems from a place deep inside my heart.
so, thank-you for listening, for reading, for loving.
i am often boggled that people would ever even read what i write -
it never seems overly interesting to me -
but, thanks.
here's the rest of the story.
--
i've seen 2 different neurologists.
I've had a lot of testing done.
lots.
we've ruled out basically everything else my symptoms could possibly be -
from the simple stuff like vitamin deficiencies to the serious stuff like strokes.
what we do know is that it's not anything else.
at my last neurology appointment -
where, as we were walking into the building my entire left arm and leg went instantly weak
{kinda ironic?}
the neurologist, an MS specialist,
said that it does seem like MS.
the symptoms are presenting like MS symptoms.
my very first MRI was indicative of MS.
in her words,
Multiple Sclerosis is a real possibility.
there are likely no other possibilities.
my c-spine {neck} MRI came back clear.
this does NOT mean that it's not MS
{as I've heard some people have thought}.
it DOES mean that if it indeed IS MS,
the disease is not advanced.
which, is good.
in a week we'll {hopefully} have some more solid answers.
as for me?
i'm doing okay.
a month ago i was on the verge of panic.
sheer and utter panic.
but now?
i'm okay. really.
almost weirdly okay.
i don't know if it's just the fact that it's been awhile since my last appointment,
or if the peace that passes all understanding is guarding my heart and mind.
probably both.
because, you know what?
this is what I wrote in an email to my sweet husband,
who's been ever-supportive,
at very early in the morning after we got the initial MRI results indicative of MS:
I've been telling myself all night (barely slept!) that what I believed about God yesterday is the same today. He is ever-present in the time of trouble. He has created good works for me to do, and his grace is so very sufficient.
that email?
it's so true today.
whatever news i get from the neurologist in a week
{be it an official diagnosis, an official non-diagnosis, or just a wait-and-see situation}
will not change what I believe about God.
{that He is all-powerful, all-Knowing, all-Sovereign}
for, His plans are to prosper, not to harm me, and to give me hope and a future.
may I love not my life, even unto death.
revelation 12:11
